We have been having some concerns about McKenna her speech, her hearing and her behavior. We went to have her tested for early intervention. But did not expect to hear this. First the good new her IQ is a genius but her behavior does not fit that. All three test show that she has Asperger my heart just dropped. I thought she was just mimicking thing that Tanner did but in a McKenna way. Do to the fact that she tested so high academically she does not qualify for early intervention. I asked them " can't she get in with the fact you guys say she has Aspergers?" again they told me that she is way to smart and I quote. " You can come back when her behavior get worse " At that point I wanted to cry. "They keep on showing me her scores and telling me again that she did not qualify she was over by one point bring her back in 6 months or so." I began to loss hope and right then I stared to remember the word that I have read, " the Infinite power of hope, The importance of hope and things we hope in and for. I heard them in my head like someone was reading them to me. I started to cry not for the reason of the test results but for the comforting words I was being giving.
They also tested McKenna in her hearing which she did not pass so Rob and I went to the hospital the next day and got her retested. Which then she pasted in her left ear but her right ear has a little bit of hearing loss that may come and go this is quit normal. I have to say this was a big relief to hear.
I have been trying to set goals for myself so today I told myself I would not raise my voice in anger all day long. ( i thought i should take it one day at a time) . Now by doing this I I real think I gave my address and all my info out to Satan.
-1- Emma woke me up at 5:00
-2- Mckenna went #2 in her underwear and would not let me clean her up. (eventually she let me)
-3- Tanner open my bathroom door and let McKenna in and they both got into my make up.
-4- McKenna throw a great tantrum in Target. legs kicking arms flaying and screaming her head off.
-5- Emma mixed up 3 sets of puzzle and made them one right after I cleaned them up.
the list could go on and on but I did not raise my voice in anger not once. I did discipline them but never raising my voice in anger.
This gives me hope that I can make it I will not put a red flag up on my door step for Satan to take away my hope. Instead I will put a white flag up for the Lord, I will surrender myself to the Lord and give him my trust, and hope.
***** Here is what I need from you guys I would love to know what Hope means to you?****
I would love to use it in my talk if you would not mind.
O and if anyone has any info on Aspergers please do share.
P.S. I also voted for the first time good times.
There is a lady in my ward that's in YW with me - I think her son has Aspergers. I'll ask her to make sure, but maybe you can talk to her and get some support there. And good job on not raising your voice! That would be really hard!
ReplyDeleteI have a friend who has 4 children, all on the autism spectrum. It's tough. I'll be praying for you.
ReplyDeleteHope means to me that there is always light at the end of every trial. I can hold onto that, even if I can't see it.
Rach, you inspire me.
ReplyDeleteHope is knowing that Heavenly Father will always step in and do what is best for us, as long as we don't question, stress, or worry about the outcome. Sometimes, we have to give it to him for him to take over. I am not sure if that helps, but that is what hope is to me.
Hey Rachel. Give me a call sometime--we'll talk aspergers. That is Logan's correct diagnosis. I have a few good books. It is CRAZY that they are not letting her qualify for early intervention. Fight it girl!!! Hope means knowing that children with aspergers syndrome are usually very successful adults!!
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